Posted by: meridianmedical on: October 12, 2008
One quiet day in early September of 2004, my life changed in the split of a second. Just one week earlier, I had gone for surgery to remove what two doctors from two separate hospitals had confirmed as a hepatic hemangioma (a non-cancerous, blood vessel tumor in the liver). Unfortunately, both of these physicians had been mistaken. So, at 39 years of age in a happy marriage, with a five year old daughter; and a great career, I was now diagnosed with Stage IV cholangiocarcinoma (cancer of the bile ducts) which had spread to other areas of my abdomen and thoracic area. Fortunately, the surgeons were successful at removing all of the cancer with the exception of one lymph node.
So, I did what most people do in a panic: “freak out” and listen to others who say “you must go to Sloan Kettering – they’re the best!” So off I went, to one of the most horrible experiences of my life. I happened to get the physician who was the coldest and least compassionate; who provided little hope, and told me my prognosis was “grim.” My family and I left, distraught beyond imagination.
However, two positive things had occurred that day while sitting four hours in the waiting room. One, the nasty doctor and his colleagues did hit on the right selection and course of chemotherapy; and a woman in the waiting room (I never did get her name) provided my husband with the name of a doctor who practiced both Eastern and Western medicine. His name was Dr. Chang, and his office was right here in New York City.
So, determined to live, to beat all odds and make sure to prove the Sloan Kettering doctor and his statistics wrong; my husband set up an appointment with
Dr. Chang. I must admit, I did not know what to expect. At the first meeting, even amidst our panic and despair Dr. Chang made my husband and I feel very comfortable as we asked our numerous questions. Dr Chang actually answered all these questions and provided hope for what an hour earlier seemed like a hopeless situation.
Dr. Chang and his staff provided a very different approach from the one we derived from our Sloan Kettering experience. Although he was supportive of the chemotherapy, radiation and surgery options available locally, Dr. Chang was also extremely knowledgeable of research and treatment that was available WORLDWIDE! I immediately felt Dr. Chang could help me!!! HERE WAS OUR FIRST EXPERIENCE OF SOMEONE PROVIDING ENCOURAGEMENT AND HOPE!
Since I lived in New Jersey, Dr. Chang asked if I was near St. Barnabas Hospital (in Livingston, New Jersey) and highly recommended a physician named Dr. Stuart Leitner. Respecting his opinion, I then became one of Dr. Leitner’s patients. After having “fired” many physicians who did not provide hope and openness to holistic treatment methods, I had FINALLY found the PHYSICIAN TEAM for me!!!!
Since 2004, I have undergone chemotherapy for one year (at St. Barnabas), and ongoing alternative and complementary treatments (with Dr. Chang). The cancer went away for one and a half years! Then, it returned for another round of the same treatment as the first time – and the cancer went away again. In the beginning of 2008, the cancer returned again.
This time, Dr. Chang suggested Dendritic Cell Therapy in addition to similar alternative and complimentary medications, supplements, and chemotherapy. So off my family and I went to Duderstadt, Germany to provide my own white blood cells so that a cancer vaccination could be made specifically for me (this was the first step in Dendritic Cell Therapy). In Germany we meet Dr. NeBelhut and his colleagues. They were extremely knowledgeable and experienced in Dendritic Cell Therapy and very hopeful about its success in treating cholangiocarcinoma. (Not to mention that the trip to Germany was fantastic!) I then added Dr. NeBelhut to my physician team.
Currently, all my scans are showing that the cancer is slowly going away and I will be rescanned in the future. I am confident that I will beat this cancer again by doing all the suggested treatments by my three physicians.
If it weren’t for Dr. Chang, Dr. Leitner, and Dr. Nebelhut I am not sure I would be alive today to enjoy my family and friends and to watch my daughter grow up. I owe them my life! My team of doctors, my family, church, and friend support, hope, a positive attitude and a fight to survive are my strongest assets to beat this cancer once and for all!
Renee
A little side note: if there is anyone out there who also has cholangiocarcinoma, I would be very happy to talk to you. We are a rare breed in the U.S.A. and sometimes it is good to talk to someone going through similar experiences.
I was diagnosed with stage 4 rectal cancer in july 2000 with too many mets to my liver (10-20) to be operable (with one more met in my lung). I am alive today, without any evidence of disease for the past four years. My tumors were not removed by surgery; they slowly shrank such that there was no cancer left when they opened me up surgically in 2005. A combination of traditional chemo (5FU/xeloda) and Dr. Chang’s supplements rid my body of the cancer. I am a very unusual and lucky survivor, and am always aware that it could return.
Given the horrible prognosis I was given at the beginning, I was as leary as anyone that any therapy, traditional or not, would make a dent in my cancer. I assumed each CAT scan would bring me the fateful news that the tumors had grown; instead I kept hearing stable or slight decrease. After five years of this, I asked my oncologist at Memorial-Sloan for the millionth time whether they might have become operable and she finally said yes. They opened me up and the tumors were devoid of live cancer.
Given that I was given nothing more than the most elementary of traditional chemos, I have to believe that it was Dr. Chang’s supplements that saved my life, mostly by attacking the tumors, perhaps also by allowing my body to tolerate chemo for so long. Dr. Chang always took the time necessary to explain why he was suggesting the 15-20 different supplements he recommended during those years; I became a true expert at pill taking. Though I researched alot on my own, mostly in the more traditional approaches, I knew I could not become as proficient as he understanding the complexities of complementary medicine and followed his recommendations. He also provided more info on traditional approaches, especially those on the cutting edge, than my oncologist.
In short, he was great. What else can I say about someone who saved my life.
1 | Krista CR / Gastric Cancer
October 12, 2008 at 11:27 pm
My father, Nick, has Gastric Cancer. In short, he had his entire stomach removed by surgery and was told that, with the surgery plus a highly toxic protocol of chemo and radiation, he faced a 7% chance of survival. He is Stage IV.
We did not settle for this answer! Intensive online research revealed that Japan had much better success rates with this cancer than the US did, so we sought to learn what treatments they were using. Then…we set out to find a doctor in the US who knew of Eastern medicine, and who would help my father not just increase his chance of survival, but respect his wish for a good quality of life.
We found Meridian!
Dr. Chang blended Xeloda (a chemo used in Asia to treat gastric, but only approved here for breast) with some boosters (Lentinan, ECGC, et.al.). My father’s chance of survival went from 7% to, approximately 53%! Not only this, but my father is at home taking his chemo comfortably, and with very few side effects.
We are speechless in our gratitude. We are, in fact, doing a benefit to spread the word of my father’s case, to let others know about Meridian and that there is more out there for cancer treatments than what we are offered in the US, and to raise some funds to donate to Meridian.
To any lay people reading this — you can do it! Read and learn what you can. Find validated research. Don’t settle!! And, go to Meridian Medical. [Originally posted 3/07]